I was engaging today in an online conversation about pain management. I had reason to mention that there are no real treatments for fibromyalgia. Or at the very least, none that work for me.
Continue reading
Archive | fibromyalgia RSS feed for this section
The Beauty Class
16 SepYesterday, I attended a makeup class with a few friends. I was very much looking forward to the event.
Continue readingFalling on the stairs
10 AugA certain klutz (not naming names) fell on the stairs last night trying to carry the recycling down to the garage, and out to the outside bin. It was only the last two stairs, but I ended up almost upside down.
Continue readingAFib Again
18 JunI spent a little over 3 hours in an ER today because of a prolonged AFib episode. I tried to wait it out for a couple of hours before giving in and going. I don’t think I’ll wait that long next time. I’m exhausted and I think I’ve triggered another fibromyalgia flare.
I’m home and resting.
Implant surgery update
2 MayTL; DR: The procedure was quite uneventful. I have an implant (or as my heart sister called it, an alien implant) in my chest. It’s under the skin of my left breast, which is tender and sore at the incision site.
Continue readingTwo Vaccines at One Go
26 OctYesterday, I went down to the local pharmacy, at 4pm, to get the current flu vaccine, and a Covid booster (Pfizer). Like with the Shingrix vaccine, the injections themselves were not a particularly big deal.
Continue readingAnother try with anti-depressants for fibromyalgia
17 FebThis past Tuesday, I started a very low dose of amitriptyline for my fibro, with instructions to “ramp up” the dosage as needed and tolerated. I started at 10mg, with instructions to increase dosage in 10mg steps up to 50mg per day. Continue reading
Strange new sleep development
26 DecIt’s nothing new that I haven’t been going to sleep at what would be considered a normal time for me. For months now, I’ve slept between four and six hours a night on average, beginning between 1am and 3am. Before, when Barbara was at home, I tended to be ready for bed and asleep no later than about 11pm, and would sleep for eight to nine hours a night. Continue reading
No, we have not found the cause of CFS/ME
23 DecApparently, like many others, I was premature when I wondered Have we found the cause of ME/CFS and FMS? Scientists have discovered that the XMRV positive results were almost certainly a case of lab contamination. Ah, well, on to the next theory, I suppose. Until then, I live the best life I can.
Contamination Invalidates Study That Linked Virus to Chronic Fatigue.
… Towers’ team said the XMRV in the studies that linked it to CFS was from contamination by a laboratory cell line. The sequences from the contaminated cell line and chronic fatigue patient samples were very similar, which is contrary to what scientists would expect from a virus if it were spreading in humans. …
Quick update
16 DecFibromyalgia is still flaring, but the warmer weather seems to have helped. I don’t do well with cold. That’s one of the main reasons I avoided moving to where Barbara would have preferred to live.
Finances are still tight, but I am holding my own. I’m still working my way through bulk foods bought when K and T were still here. Frozen, canned, dried. Might as well use it while I can.
I’m crying less, and when I do, I can name the specific trigger for the tears. So I guess that’s progress. My therapist has made some recommendations on where I should focus my energy that, while I see the purpose, I am not entirely comfortable with. Still thinking that over.
I did the homework he gave me. It wasn’t any easier than I thought it would be when he first gave it to me two weeks ago. Nonetheless, he seemed satisfied with it. I guess that’s good too.
I’m just taking things day by day now. I still can’t see my future, or really my motivation. It takes time, and I refuse to be rushed by people who don’t know what this is like.
An Aging Trans Woman 