I spent a little over 3 hours in an ER today because of a prolonged AFib episode. I tried to wait it out for a couple of hours before giving in and going. I don’t think I’ll wait that long next time. I’m exhausted and I think I’ve triggered another fibromyalgia flare.
I’m home and resting.
I had an episode this afternoon where for roughly an hour, my heart rate dropped to 30bpm. This is according to my smartwatch readout. You may remember that I have experienced some bradycardia in the past year, and it’s part of why I had a loop recorder implanted in my chest recently. Never before has such an episode lasted this long though.
Continue readingI spoke to my cardiologist a little while ago about the results of my cardiac CT on Monday. He’s concerned mostly, as far as those results, about enlargement of the aortic artery, and also some fairly significant calcification (stenosis) of the aortic valve. He has ordered an additional test regarding those conditions.
Continue readingI apparently had another seizure early this morning. I spent at least six hours in a severe postictal state. Most of that time was spent essentially unconscious (very deep sleep). It was around 3 pm before I woke and felt mostly normal. I still have a bit of a headache, but that’s normal for me.
During the time I was conscious this morning, I was nauseous, vomiting, and so dizzy I could barely stand. Actually I couldn’t sit either, not even long enough to urinate. As soon as I got back to horizontal, and in bed, the dizziness,etc. stopped and I passed out within minutes.
No, I didn’t call the neurologist. He didn’t even respond to my call to the nurse back on June 5-6 when nearly the exact same thing happened. At least today I didn’t injure myself from convulsions. I have no memory of the seizure itself, but that too is normal for me. I never remember anything but the postictal period.
I didn’t feel like eating after I finally woke up, so today was a fasting day. I drank about 2/3 a normal day’s water. I’ll be going back to sleep relatively soon. I’m in bed with lights out while I type this.
I promise, I’m okay. Just another fun day in spoonie land.
https://www.ncbi.nlm.nih.gov/books/NBK526004/
To start with, I’m fine. I went on Monday 12-April, and ended up spending the entire day getting checked out. I checked in at 11:45am. It was about 6:00 pm when I was released.
Continue readingTIL. Well, okay, yesterday I learned. No, not from the doctor. I just had begun to notice that my breasts seem to be growing again. As it happens, I’ve got an appointment with an endo who specializes in transgender HRT on next Monday. So I decided to search hormones and epilepsy. This might be about to get interesting, in the “May you live in interesting times” curse definition of interesting.
Continue readingApparently, like many others, I was premature when I wondered Have we found the cause of ME/CFS and FMS? Scientists have discovered that the XMRV positive results were almost certainly a case of lab contamination. Ah, well, on to the next theory, I suppose. Until then, I live the best life I can.
Contamination Invalidates Study That Linked Virus to Chronic Fatigue.
… Towers’ team said the XMRV in the studies that linked it to CFS was from contamination by a laboratory cell line. The sequences from the contaminated cell line and chronic fatigue patient samples were very similar, which is contrary to what scientists would expect from a virus if it were spreading in humans. …
Whittemore Peterson Institute – XMRV.
The spectrum of neuro-immune diseases including: Myalgic Encephalomyelitis (ME/CFS), Atypical MS, Fibromyalgia and Gulf War Syndrome, share common abnormalities in the innate immune response, which result in chronic immune activation and immune deficiency.
We have detected the retroviral infection XMRV in greater than 95% of the more than 200 ME/CFS, Fibromylagia, Atypical MS patients tested. The current working hypothesis is that XMRV infection of B, T, NK and other cells of the innate immune response causes chronic inflammation and immune deficiency resulting in an inability to mount an effective immune response to opportunistic infections.
Xenotropic murine leukemia virus-related virus – Wikipedia, the free encyclopedia
Wikipedia fails to mention the FMS link, and is clearly not as positive about any of the links as WPI. Still, it’s something worth knowing about.
More to read: Could a Virus Cause Chronic-Fatigue Syndrome? – Newsweek
Adventures Of An Aging Trans Woman 