This morning, they performed a test I had actually never heard of, called a Bubble Echocardiogram. Continue reading
Barbara – Still in ICU
8 May- Comments Leave a Comment
- Categories Barbara hospitalization
- Author Janet Logan
Settled once again in the ICU
7 MayAfter much back and forth, Barbara was finally admitted under her surgeon. He put her back in the transplant ICU. That’s where she was originally post-surgery (about 6 weeks ago).
She’s more than a little unhappy. She spent 11 hours in the ER. Half that was NPO. She is still NPO, thirsty, grouchy, and generally unpleasant. The good news for her is that this unit permits one “primary support person” to stay overnight. So I will stay with her tonight, and then tomorrow, go to the SNF to get her belongings.
She is on a heparin drip to break down the clot and prevent formation of any more. Tomorrow they will do some more imaging studies to determine whether or not there is a new fistula. Even if there is, it will be minor, particularly compared to the risk posed by the clot.
Tags: lasarina hospitalization
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- Categories Barbara hospitalization
- Author Janet Logan
Still Waiting
6 MayWe are still waiting in ER for cardiac consult from surgeon. He is in surgery. No clue how long we will be waiting. We know only that he wanted her in the ICU, but apparently had to go to surgery before the orders were written.
This hospital is a level one trauma center. That’s a good thing and a bad thing. Good doctors. Really good doctors. Unfortunately, they can get pulled away to save lives in more immediate danger. That seems to be what happened here.
Tags: lasarina hospitalization
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- Categories Barbara hospitalization
- Author Janet Logan
Outcome of CT Scan
6 MayNo problem found with Barbara’s intestines, but … A significant clot was found in superior vena cava. Barbara is being admitted. Don’t know for how long.
Tags: lasarina hospitalization
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- Categories Barbara hospitalization
- Author Janet Logan
Quick status
6 MayBarbara is in for abdominal CT now. That’s all I know so far. Thanks everyone for your concern.
Tags: lasarina hospitalization
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- Categories Barbara hospitalization
- Author Janet Logan
Quick request for Barbara
6 MayPrayer for Barbara needed.. May have a leak in her intestines. If so, back to surgery. Headed off for CT as soon as possible.
Tags: lasarina hospitalization
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- Categories Barbara hospitalization
- Author Janet Logan
SNF Update
4 MayBarbara has now spent a little over 24 hours in the SNF. It’s different. She realized today that part of why it was making her uncomfortable was that she had become comfortable with the hospital setting. The SNF is more home like. It’s not a hospital. And that was making her uncomfortable. Continue reading →
Tags: lasarina hospitalization
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- Categories Barbara hospitalization
- Author Janet Logan
I hate our “healthcare system”
28 AprSo Barbara is being down-graded to a lower level of care. I suspected that the decision was not so much a clinical decision as a monetary one. I got absolute confirmation that it is not a purely clinical decision just this morning. Her doctor thought we had at least six days. This morning he was informed that “No, the deadline is tomorrow”. He is PO’ed. He is refusing to write the transfer order.
As far as he is concerned, he wasn’t given enough time to prepare for this level of care change (including narcotic weaning, among other things) and “They [the LTAC] have made plenty of money off her these many months, they can eat a few days” while he gets her ready in an appropriate manner.
I like this doctor. He doesn’t work for the facility directly, and can therefore buck their decision on this. And luckily, he is in a mood to do so.
Tags: lasarina hospitalization
- Comments 1 Comment
- Categories Barbara hospitalization, Healthcare
- Author Janet Logan
Latest on Barbara’s Recovery
27 AprToday we were informed that she is not sick enough to stay at the LTAC. Unfortunately, she is also not well enough to come home, or even to go to acute rehab. She simply isn’t strong enough for either option. So, she has to go to a skilled nursing facility (SNF). For those not in the know, SNF is the politically correct term for a nursing home.
This decision is being driven entirely by the insurance company. SNFs are less expensive than the LTAC. Continue reading →
Tags: lasarina hospitalization
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- Categories Barbara hospitalization, Healthcare
- Author Janet Logan
Barbara and her relationship with food
25 AprBarbara really took to heart the threat of tube feeding. Almost overnight she went from picking at her food to pretty much cleaning her plate at every meal. She really turned her nose up at the liquid supplements too.
She even asked for, and ate, most of a foot-long Subway Club yesterday (no veggies, just meat, cheese, bread). She was still able to eat most of her breakfast today. So that’s very significant progress. Doctor has even started talking about acute rehab in the next couple of weeks.
Tags: lasarina hospitalization
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- Categories Barbara hospitalization
- Author Janet Logan
Janet Logan
I am a well educated woman, a lesbian, and an eclectic Pagan. I am loving and giving. I am a caretaker type, who often fails miserably at self care. I have fibromyalgia, seizure disorder, and AFib. I am complex, complicated, and worth the effort.
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