Archive by Author

Trekking Further South

3 Feb

My roommate and I have been couch surfing for several months. We’ve had significant difficulty finding a place in Metro Atlanta area. The market is horrendous in this area, and it likely doesn’t help that I’m openly trans. The current situation is untenable in the long term, and we need to get settled somewhere.

A mutual friend of ours in Daytona Beach reached out and suggested that we join her in Daytona Beach. I know. I can already hear you. Are you kidding? Florida⁉ DeSantis and the GOP? Believe me, I’ve been mulling this over for days. Honestly, it’s not much different than the political situation here in Georgia. We have Marjorie Taylor Greene. She’s worse than DeSantis, in my opinion.

Anyway, it’s the only long term offer we’ve gotten. And when her current lease is up, the three of us plan to get a house together. Think a reboot of The Golden Girls. Wish us luck. We may very well need it. Blessed Be.

Spoonie News – Seizure?

2 Nov

I apparently had another seizure early this morning. I spent at least six hours in a severe postictal state. Most of that time was spent essentially unconscious (very deep sleep). It was around 3 pm before I woke and felt mostly normal. I still have a bit of a headache, but that’s normal for me.

During the time I was conscious this morning, I was nauseous, vomiting, and so dizzy I could barely stand. Actually I couldn’t sit either, not even long enough to urinate. As soon as I got back to horizontal, and in bed, the dizziness,etc. stopped and I passed out within minutes.

No, I didn’t call the neurologist. He didn’t even respond to my call to the nurse back on June 5-6 when nearly the exact same thing happened. At least today I didn’t injure myself from convulsions. I have no memory of the seizure itself, but that too is normal for me. I never remember anything but the postictal period.

I didn’t feel like eating after I finally woke up, so today was a fasting day. I drank about 2/3 a normal day’s water. I’ll be going back to sleep relatively soon. I’m in bed with lights out while I type this.

I promise, I’m okay. Just another fun day in spoonie land.

https://www.ncbi.nlm.nih.gov/books/NBK526004/

Spoonie news – Chronic Kidney Disease

9 Sep

Approximately three weeks ago, I was informed that my kidney function was “low”. There was a repeat test which confirmed that my eGFR was 51. That number suggests a possibility of early Chronic Kidney Disease (CKD). Because of the possibility of them contributing to that condition, I have been told to discontinue all NSAID medications. I had been using a prescription NSAID for a couple of years now to control fibromyalgia pain.

The good news, I guess, is that the flares so far since this change have been mild, though more frequent than previously. It was suggested to me that I use Extra Strength Tylenol. That’s slightly better than Skittles. But if I must accept the return of fibro pain on a regular basis in order to support kidney function, then that is what I shall do.

This past week, my PCP reached out to recommend a follow up visit in early February on this topic. My reading on the Internet suggests three months would be more common, but since this is apparently a mild case, I suppose a couple of extra months is no big deal.

So mote it be.

High School, Homecoming, Halloween, and Vampires

18 Aug

A reminiscence from my senior year of high school. I was more than a bit of a nerd. I had gotten involved with the theatre department, and actually had a role in the senior class production of The Music Man. As a result, I had actually garnered a couple of freshman groupies. But I digress from the story I’m here to tell. This came to my mind late last night, and I had to promise myself I would write it before I could get any sleep. I take those things pretty seriously, being that I am a witch.

Our homecoming game that year (1975) was on Halloween. The school planned a spirit week, including a costume day on Friday the 31st of October. I decided I would dress as a classic vampire: cloak, pale skin, fake teeth, blood dripping from the corner of my mouth. When I got to school that day, I discovered that two of my friends had made the same choice. We spent every spare moment that day hanging together and scaring the girls. I don’t think they were really scared, more startled at the most. But hey, it was Halloween. We had a really fun time that day.

The game was against our cross town rival, so there was a lot of excitement, on both sides. We had attracted the attention of the Principal of the school, not in a bad way. He told us he was worried about the possibility of a “rumble” breaking out at the game, and wanted to have us perform on the sidelines to relieve tensions. In other words, give the students on both sides something to take out their aggressions on in a controlled way. We agreed to do so, and started preparing for that event. We really just needed to refresh makeup, and maybe our slicked back hair.

When we were almost ready, about half an hour before the gates would open for the game, he approached us with a suggestion for an addition to our act. He thought we should carry a fake coffin as we made our rounds on the sidelines. It would be emblazoned with the name of our rival team. We initially agreed. Simple enough to construct a light weight box for that purpose.

Before we had constructed the box, we heard a truly sad piece of news. One of their cheerleaders had been killed that day in an auto accident. Their entire school was obviously grieving. Here’s the incredible bit. Our principal was not deterred at all from his suggestion. He still thought we should do the coffin. We were incredulous, and as one, told him that no way would we do that. I’m sure we lost some value in his eyes.

We did however do the vampire routine for the game. We had fun, and played it up really big. We got to meet cheerleaders for both teams, and hang out with them. It was a blast, but what really struck me was that it was our team’s fans who were obnoxious. They threw sodas and snacks onto the sidelines at us, yelled ugly insults, and were just generally jerks. The visiting team’s fans were friendly and kind. They invited us to sit with their band, and were generally all-around good sports.

I don’t remember if we won the game, because to be honest, sports were never my thing. What I’ll never forget is the general jerkish behavior of both my principal, and my team’s fans. Maybe the visitors would have been less friendly if they hadn’t suffered that loss. Who knows? But I’m not going to forget how that night turned out. I like to think we made a difference, and that the coffin stunt would have been a huge mistake.

More on my father’s passing

15 Mar

Just need to get something off my chest.

As you likely know, my father passed away in January 2021. We hadn’t spoken in a dozen or so years. He didn’t approve of my life choices. It was difficult nonetheless that we weren’t able to reconcile, but I got past that. Or so I thought anyway.

Tonight, my female cousin on his side reached out to me, at the request of his widow, my stepmother. My cousin asked for permission to provide my contact info. It seems that his will is being probated and they needed my contact info for that process. I told my cousin she could provide my info to stepmom.

Mind you, unless I am sorely mistaken, there isn’t much to probate, and nothing I’d particularly want from him, or her. Anyway, I’m not exactly looking forward to hearing from the stepmother. It’s just brought up unresolved pain. For example, she deadnamed me in his obituary.

And now, that’s off my chest. At least, I hope so.

Covid-19, Vaccines, and Masks

27 Jul
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Paganism and Gender Roles

2 Jun

A while back, I mused about gender roles in Paganism as part of another post.

[…] I do believe that this tendency to see deity and it’s representatives as so binary is an opportunity for that community to broaden it’s collective culture, and to become much more accepting.

That’s a topic on which I need to spend more time ruminating, and not really the point of this post. […]

https://janetannelogan.wordpress.com/2021/02/06/respected-elder/

Today I ran across a post on that very topic on Patheos that addresses my thoughts in a very coherent manner, while also expanding on it significantly. So I’m going to direct you, my reader, to that piece by River Enodian. It was written several years ago, but it still very relevant to my viewpoint.

You can find it here.

Another ER visit

13 Apr

To start with, I’m fine. I went on Monday 12-April, and ended up spending the entire day getting checked out. I checked in at 11:45am. It was about 6:00 pm when I was released.

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Out and About

17 Mar

I ventured out to dinner last night with a couple of friends. Had a great time. And introduced one friend to the wonder that is crab legs. King and snow.

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Sore equal more?

12 Mar

Sore = more, right? I’ve noticed some breast tenderness over the last couple of weeks, and I have been hesitant to say anything. I didn’t want to jinx it. So, here’s a new photo taken today.

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