Epilepsy

1 Feb

I’ve been mostly quiet about this topic so far, because I wasn’t convinced it was accurate. I was diagnosed, on the 7th of January, with a seizure disorder. Back in late October, I had an automobile accident. The accident was a result of an apparent syncope episode while I was behind the wheel. That, combined with a several month pattern of recurring muscle spasms, not helped by muscle relaxers, led my GP to refer me to a neurologist. I saw him on the 6th. We spoke for about 30 minutes about my concerns. He ordered an EEG that same day.

The next evening, he called me and told me that they’d seen an abnormality in my EEG results. He referred to it as a “spike in the left frontal lobe” lead of the EEG. Based on that result, and the issues we had discussed, he immediately prescribed an anti-seizure medication for me. Because I use a mail order pharmacy, it was the 14th before I received that prescription. I am to take the medication twice daily. I’ve been taking it since bedtime on the 14th. One of the known side effects is drowsiness. I’ve been on it for just over two weeks, and I’m finally beginning to be mostly able to stay awake during the day. The frequency, and severity, of the “spasms” has been greatly reduced, so I guess I should go ahead and accept the diagnosis.

Of particular interest to the people following my trans journey: You may remember that, for reasons, I’ve not changed my name legally to Janet. Therefore all of my medical records are still in my deadname. That said, the hospital system that my doctors are all part of records preferred name and gender as part of the record. I was pleasantly surprised that the new doctor’s staff and office were fully aware of what to call me. Check-in was no issue. Nurse that took my vitals was pleasant and respectful.

The EEG tech blew it on pronouns, but was immediately corrected by the doctor, who had just come in to see if that was underway yet, and to let me know what would happen next. I was sitting there bald, with no wig, so I can’t blame the tech really. I was in top and skirt, and I do have boobs, so maybe blame the tech a little bit.

There is an MRI scheduled for 8th of February. As it happens, I also see the endocrinologist at the Gender Clinic that same day. I had scheduled that a couple of months ago because my GP was not comfortable making some changes I wanted to my HRT regimen.


7 Responses to “Epilepsy”

  1. Cass Morrison's avatar
    Cass Morrison February 1, 2021 at 4:06 pm #

    Hope everything works out as well as possible and controllable by meds. At least you’re not grinding through the identity part.

    Like

    • Janet Logan's avatar
      Janet Logan February 1, 2021 at 4:09 pm #

      Thanks Cass. And yeah, it was a great relief that identity wasn’t also an issue.

      Like

  2. Melanie Weldon's avatar
    Melanie Weldon February 4, 2021 at 11:29 pm #

    Awww no I’m so sorry to hear this Janet. Seems at times as soon as we can stand up on our feet for a minute, life smacks us down again. Just remember tho, all we gotta do is get back up. And we can and we do. And you sure have done that a million times yourself. You’re not alone I promise. You have some real courage and grit too many others don’t. I’m glad to hear the medicine is helping and I hope the sedating affects get less and less in time. And I’m really happy to hear how your clinic and Drs gave you the respect and dignity you deserve. It means the world is waking up finally I hope. Your struggles are part of why it is. So you really have made a difference and you should be proud! I don’t follow any blogs it’s too difficult for me on a phone (no computer) but I’m on mewe and I’d love it you keep me updated whenever our paths cross.
    You take care Georgia girl! (You’re the only Georgian i know!)
    Love Scarlet (melanie) from Minnesota

    PS. I selected the box below to be notified by email

    Liked by 1 person

    • Janet Logan's avatar
      Janet Logan February 4, 2021 at 11:43 pm #

      Thank you for your kindness. I like to believe I’ve made a difference. It’s hard to hate a minority when you know one personally, right? I’ll try to keep you updated as things progress. Kisses and hugs from Georgia to you Scarlet from Minnesota. 💜😘

      Like

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